An effort to create a dedicated research hub at Vanderbilt University Medical Center is running years ahead of schedule, thanks to grassroots philanthropy and support from the Tennessee state government.
, is less than $100,000 away from its phase-one goal of $3.5 million, according to foundation officials.
"We thought we would get there by 2025," LiveLikeLou Foundation executive director Wendy Faust tells Axios. "To be there today is really exciting."Experts and advocates believe the groundswell of support could represent a gateway to meaningful new treatments for ALS, a debilitating and deadly neurodegenerative disease that robs people of their ability to move, speak and breathe.
Evan Campa, a local advocate who was diagnosed with ALS in 2018, and was a leading force in the push for more treatments and"We're honored and proud to be part of this campaign," Campa tells Axios in a written statement. "We believe the campaign has charged forward because the community understands the moment — a treatment is around the corner if we keep pushing.
Chetkovich compares the present-day battle against ALS to the fight against multiple sclerosis in the 1990s. He says that disease also seemed impenetrable until a rapid succession of discoveries quickly made it a chronic but treatable disease."There's a lot of ground to cover," Chetkovich says. "We're really excited about this partnership. We know that we can make great strides forward.
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