Rory Harty's parents noticed he had a swollen belly and seemed fatigued.
Rory Harty’s parents noticed they could no longer fasten his nappies, and just assumed he needed a bigger size.
But, alarmed by how ill Rory looked, a receptionist alerted a doctor to his deteriorating condition and the family were immediately sent to an adult resuscitation area. One day after Rory’s operation to remove fluid on his lung, he began a six-week course of chemotherapy for t-cell acute lymphoblastic leukaemia. His total treatment was set to last around three years.
“A few days after , he hadn’t really got any better,” she said. “He had an afternoon nap and he was normally really good after his nap; he had a routine. He would get his dummy off the fireplace, go lie on the settee then he would pay with his big brother. “When the consultant came in, the nurse came in and I saw her Macmillan badge...at this point, I didn’t really know what oncology meant, but I knew what Macmillan were.
“Fortunately, we live five minutes away and, after feeling how cold the room got, I headed home for a blanket, a hot water bottle, books, Rory’s special toys, and Rory’s Christmas presents. The box has already been handed out to families for the past two years and the pair have no plans to stop their charitable work. They have also created the Dino Box, which is given to all independent funeral homes in Chorley.“It was an idea and dream that was thought up out of deep grief, sorrow and pain. We purchase the items ourselves through money donated via our Just Giving page. We create the boxes in Rory's bedroom, and Noah has a big hand in this.
Jake Macaree was born with a rare genetic condition that affects only one in 100,000 children and passed away aged two.
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