Brain Tumour facts- 10 things you should know about brain tumours
A SCHOOLBOY has been denied life-extending treatment because his incurable brain tumour is one millimetre too small, his heartbroken parents have said.: "We got the news it had shrunk, which is obviously very good news, but the double-edged sword was that we are now not eligible for the drug.So far, they have raised more than £30,000.didn't improve, and physio exercises left him "crying in pain", Nick, 58, and Vicky, 50, pushed for an MRI scan.
"Ronnie has gone from bouncing off the walls, riding his bike, doing art and going down the park with his friends to not being able to use his hands. DIFFUSE midline gliomas are the second most common type of primary high grade brain tumour in children.A patient's prognosis will vary depending on the tumour and how they react to treatment, but the average life expectancy after diagnosis is less than a year - usually between eight and 11 months.
Nick said: "In the months since Ronnie was diagnosed with DIPG, his appearance has changed drastically. "We would like to reassure patients that this Trust is dedicated to providing the very best levels of care."ONC201, also called dordaviprone, is an experimental drug to treat serious brain tumours in children and young adults.People with this type of tumour usually don't live more than nine months.
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