Heartbreaking footage of Celine Dion from 2008 emerges as her condition of Stiff Person Syndrome started while filming the documentary, Celine Through the Eyes of the World.
Celine Dion has revealed her twin sons Nelson and Eddy, 13, learned to use 'panic buttons' during 'crisis' drills amid her struggle with stiff person syndrome.
To ensure the boys are prepared, Celine and her physical therapist rehearse a 'crisis' with Nelson and Eddy every couple of months, she told People. 'The idea of telling them and showing them, it was not to frighten them. It is for them to know:"I'm your mom and it's my responsibility. You're old enough to understand I might need your help,"' Celine added.
She noted that they would 'have something to eat tonight and tomorrow, but what if I don't know what's going on with me, and what if I die? What if I don't wake up?' Once she received an official diagnosis, she informed her children of the situation and reassured them that she would survive. 'My voice is the conductor of my life,' she says in the new trailer. 'When your voice brings you joy, you're the best of yourself.'
As the music star – who attended a Rolling Stones concert recently – speaks in the trailer, another voice is heard repeating Celine's name over and over while a 911 operator asks, 'What's your emergency?' In it, the Canadian admits she was reluctant to share too much about her recent struggles, however she does reveal how limited she is during her workouts.
Celine opened up about her health battle in a rare interview with Vogue France in April. Asked how she is doing, she replied: 'I'm well, but it's a lot of work. I'm taking it one day at a time'
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