The singer first revealed her diagnosis in December in an emotional video shared on social media.
Stiff Person Syndrome is a rare, progressive neurological disorder that most commonly causes muscle stiffness and painful spasms in the torso, arms and legs.
“It’s an illness we know so little about,” Claudette said of Dion’s symptoms. “There are spasms — they’re impossible to control. You know [how] people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles,” she says, dismayed. “There’s little we can do to support her, to alleviate her pain.”
In her December post, the “My Heart Will Go On” singer admitted that she has been “dealing with problems with my health for a long time,” and that, “Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to.”
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