“I don't want anybody to feel alone' - A Davis county mom is raising awareness about a condition that has impacted her life since 1996. JFRANCHIREPORTS
SYRACUSE, Utah — A Davis county mom is raising awareness about a condition that has impacted her life since 1996.She visited a doctor who initially thought the tumor was cancerous.But it turned out this tumor wasn’t cancer. DeAnn would learn she had a desmoid tumor – a non-metastasizing tumor that can have its own serious complications.
Doctors are turning to surgery as a treatment option less frequently because the tumors often return. “It's so rare it's hard to get enough patients to provide a robust study that will show small differences between different treatment options,” said Dr. Ziga Cizman, an interventional radiologist at the Huntsman Cancer Institute.She has overcome complications from surgeries over the years and nearly had her leg amputated. She still lives with the fear of that becoming a reality.
She also manages a Facebook support group for people around the world living with these cruel tumors. It currently has more than 5,000 members.
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