Evan's Story
Kyle and Tina Carkhuff describe their 17-year-old son, Evan, as one happy kid. But that wasn't always the case. After Evan was born, he faced significant developmental delays and later struggled with uncontrollable seizures and scoliosis. But he never gave up-and neither did his parents.
At his worst, Evan was having over 200 seizures a month. His doctors in Philadelphia didn't have answers, but they knew his seizures could end up becoming problematic. And with Evan's autism diagnosis and other symptoms, it was hard for the Carkhuffs to know which medical specialists to turn to. His pediatric neurologist in Philadelphia encouraged the Carkhuffs to move to Houston and seek care from specialists who treat children with highly complex medical conditions.
"Dr. Younas said there were no nonsurgical treatments for Evan," said Tina. "He said in less severe cases, they might try a brace or physical therapy, but Evan's autism and seizures made these a bit harder to do because of his lack of ability to understand and be compliant. He felt like surgery was the best option, but he wanted to see how Evan grew before we actually did the surgery.
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