For kids with COVID-19, everyday life can be a struggle

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For kids with COVID-19, everyday life can be a struggle
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Eight-year-old Brooklynn Chiles fidgets on the hospital bed as she waits for the nurse at Children’s National Hospital. The white paper beneath her crinkles as she shifts to look at the medic…

By COLLEEN LONG and CAROLYN KASTERWASHINGTON — Eight-year-old Brooklynn Chiles fidgets on the hospital bed as she waits for the nurse at Children’s National Hospital. The white paper beneath her crinkles as she shifts to look at the medical objects in the room. She’s had the coronavirus three times, and no one can figure out why.

Brooklynn Chiles looks at her smartphone as her mother, Danielle Mitchell, works from home in Washington, Wednesday, Feb. 9, 2022. Brooklynn’s father, Rodney Chiles, died of COVID-19 last year and she has tested positive three times. Brooklynn is part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

Danielle Mitchell gives her daughter, Brooklynn Chiles, 8, a COVID-19 antigen rapid test at home in Washington, Sunday, Jan. 9, 2022. Proof of a negative test is required for Brooklynn to attend third grade classes at Rocketship Rise Academy Public Charter School in Washington. Charlie Forte, 8, is prepped for an MRI during a long day of testing at Children’s National Hospital, in Washington, Wednesday, Jan. 26, 2022. Charlie did not have COVID-19 but her sister, Lexie, 6, did. Both are part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

Tara Carpenter reads the book “Guess How Much I Love You” with her daughter, Alyssa Carpenter, 2, before her afternoon nap in Haymarket, Va., Friday, Jan. 28, 2022. Alyssa has had COVID-19 twice and suffers long-term symptoms. She is part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

Alyssa Carpenter, 2, center, sucks on her fingers during Tiny Tot ballet and tap class at Lyrique Dance in Warrenton, Va., Saturday, Jan. 15, 2022. Alyssa has had COVID-19 twice and suffers long-term symptoms. She had a fever before dance class this morning. She is part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

Danielle Mitchell talks about her daughter, Brooklynn Chiles, 8, in her bedroom home office in Washington, Wednesday, Feb. 9, 2022. Brooklynn’s father, Rodney Chiles, died of COVID-19 last year and Brooklynn has tested positive three times. She is part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

Family photos of Danielle Mitchell and Rodney Chiles and their daughter, Brooklynn Chiles, decorate the kitchen refrigerator in Washington, Wednesday, Feb. 9, 2022. Rodney died of COVID-19 last year and Brooklyn has tested positive three times. Brooklynn is part of a NIH-funded multi-year study at Children’s National Hospital to look at impacts of COVID-19 on children’s physical health and quality of life.

But, as with some adults, there are still bizarre outcomes. Some youngsters suffer unexplained symptoms long after the virus is gone, what’s often called long COVID. Others get reinfected. Some seem to recover fine, only to be struck later by a mysterious condition that causes severe organ inflammation.

Children’s has about 200 kids up to age 21 enrolled in the study for three years, and it takes on about two new patients each week. The study involves children who have tested positive and those who have not, such as siblings of sick kids. The subjects range from having no symptoms to requiring life support in intensive care. On their first visit, participants get a full day of testing, including an ultrasound of their heart, blood work and lung function testing.

“It was just super frustrating,” says Tara Carpenter, who is quick to add that no one’s to blame. “We’re trying to find out answers for our kid and nobody could give us any. And it just was really frustrating.” In their work-ups, the children receive full medical check-ins. They also receive a full psychological assessment, run by Dr. Linda Herbert.

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