For people with sickle cell disease, ERs can mean life-threatening waits

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For people with sickle cell disease, ERs can mean life-threatening waits
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Sara Hutchinson | KFF Health News

Heather Avant always dresses up when she goes to the emergency room. “I’ve been conditioned to act and behave in a very specific way,” said Avant. “I try to do my hair. I make sure I shower, have nice clothes. Sometimes I put on my University of Michigan shirt.” It’s a strategy to combat discrimination the 42-year-old photographer of Mesquite, Texas, has developed over a lifetime of managing her sickle cell disease, a rare blood disorder that affects an estimated 100,000 Americans.

Paula Tanabe, a professor of nursing at Duke University, who has spent decades researching ways to improve care for sickle cell patients, said a confluence of factors adds to the racial bias patients may face. “Emergency rooms are incredibly overcrowded, at rates that we have never seen before, and that’s for everyone,” said Tanabe. Legislators are trying to help. One federal bill introduced in June would allocate $8.

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