Starting Tuesday, EverythingALS, a Silicon Valley nonprofit, is starting a study involving ALS patients, using shoes with high-tech censors to track and analyze their movements.
, a Silicon Valley nonprofit and advocacy group, is starting its second research study involving ALS patients, using shoes with high-tech censors to track and study their movements. The study is open to 100 participants in the early stages of ALS, and is still accepting new participants.
Despite seeking medical expertise early on in his symptoms, when his ankle wasn't supporting his foot, Cohen and Navar still waited nearly three years before doctors diagnosed Cohen with ALS. In December 2020, EverythingALS launched a speech study, using an artificial intelligence platform designed by San Francisco-based., to analyze voices and facial movements. So far, close to 1,000 participants, both ALS patients and from the public, have logged into the online platform to record their voices via their webcams.
"What we are doing is peeling the onion one by one," Navar said. "Our goal is by the end of the year, we want to have an algorithm and a biomarker in front of the FDA," Navar said.
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