Spurred by stories that diabetics are spending thousands of dollars a year on insulin, or even dying trying to ration it, lawmakers in at least 36 states are trying to tackle the issue. But the drug industry is pushing back.
and worked to weaken one that had already passed in Colorado. In May 2019, Colorado became the first state to cap insulin copays for diabetics with private insurance. “The situation had become so dire that we needed to pass something right away that would have an immediate impact on the price of insulin,” state Rep. Dylan Roberts, a Democrat and the bill’s author, said in an interview. The law was supposed to set a $100 copay limit on a diabetic’s entire monthly insulin prescription.
“The manufacturers weren't excited about it. But they said, ‘Hey, we're a whole lot more OK with what you're doing than what they're doing in other states,’” Utah state Rep. Norm Thurston, a Republican, said in an interview. “And I was like, OK, that tells me maybe I need to push harder. And they said, ‘No, no, no, you're doing fine.’”Facing off against industry lobbyists at legislative hearings, volunteer advocates share personal stories about the crushing costs of insulin.
PhRMA, the leading drug industry group, argued that the industry was already taking voluntary steps to help diabetics, including supporting rebate and discount programs and advocating for insurers to limit copays.
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