'I tucked my little girl into bed as usual - hours later she was gone'
David Hutton glanced down at his daughter as he held onto her tiny hand. The sound of her laughter filled the air as they walked up and down the escalator – something little Isla loved to do.
When Isla was born in 2015, she was diagnosed with long QT syndrome, or LQTS, a heart signalling disorder that can cause fast, chaotic heartbeats and affects one in every 2,000 people. She spent almost one year in hospital until she was finally allowed home just before her first birthday. Following her discharge, she was treated with a drug called mexiletine, however, the dosage required was so high it often caused seizures.
“I was by her side in hospital the whole time. Time seem to flash by but it was like slow motion. I wouldn’t have wanted her to be suffering. If she came back around, I wanted her to still be the happy little girl she was. She was the happiest little girl you could have ever met.” What started out as a way to say thank you to Alder Hey surgeon Dr Ram Dhannapuneni turned into funding four 'Healing Little Hearts' surgery camps in India, through a ball at the Shankly Hotel in Liverpool.
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