Living with visual impairment: 'I can't make out my baby's facial expressions at all'

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Living with visual impairment: 'I can't make out my baby's facial expressions at all'
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Doctors told Shona Murray-MacKinnon she was “severely sight impaired” at the age of just 33. She tells PMGallagher1 the impact diabetic macular oedema has had on her life following the birth of her daughter

– the accumulation of excess fluid in the extracellular space within the retina in the macular area]. And the charity was really good; they’ve been really supportive. I’m part of a group where we have a Zoom group chat once a month for people with DMO. We’ve a nice wee community. We’re on WhatsApp and keep in touch with everybody. It’s really good just having that extra support network there.

I had to liaise with my eye doctor and my diabetic doctor, and they just said if we wanted to go ahead they would support us, and the support has been great. We had the little one on 30 December. The midwife was great, but they just didn’t know how best to support as The Macular Society had already said I should be getting support through social work, from different healthcare professionals when the wee one comes, because it’s a traumatic time enough as it is, being a first time mum.

I can read font size 36 and can only make out hand movement right in front of me. I can’t see a metre in front of me. I can’t make out my baby’s facial expressions at all. I can see when her eyes are open and shut but that’s pretty much it. For all the physical challenges – changing the nappies, doing the bottle – not being able to see her properly has been the biggest challenge, 100 per cent. The wee things you kind of take for granted, I think.

When I was pregnant they said there’s hope, if it is a neurological thing, that my sight might come back a little when the wee one comes. It’s all well and good saying that and giving a bit of hope, but when it doesn’t happen, it just deflates you. That’s been a bit disheartening.

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