When Texas started scrubbing people from Medicaid after a three-year pause on removals during the pandemic, one family lost the insurance coverage that helped provide all treatments for their medically complex child.
But according to a letter addressed this week to the executive commissioner of the state agency that manages Medicaid for Texans, the Texas Health and Human Services Commission, approximately 80,000 eligible people have “lost coverage erroneously.” The letter, obtained by The Texas Tribune, was written by HHSC employees who did not name themselves, signing off only as “Concerned Texans and Dedicated Employees.
In Amelia’s case, Whites said the state told her that her husband’s income in the month leading up to her application renewal was too high to requalify, which surprised her because his income changes every month. She has now reapplied for Medicaid with the most recent income information she has and has also applied for what is known as Medicaid “buy-in” coverage, which allows for slightly higher incomes, and is waiting to hear back from the state.
Lackie helped Amelia recover after she returned from heart surgery at Boston Children’s Hospital last fall for her heart defects. She helped administer oxygen when Amelia would start retching and lost the ability to breathe. Last spring, she accompanied Amelia to her preschool, texting Whites with updates when Amelia’s eyes glazed over and her mouth dropped open — the telltale signs that an absence seizure was underway.
Medicaid covered more than Lackie’s services for Amelia. It also provided regular supplies for her gastrostomy tube and oxygen, which she needed when she couldn’t breathe. A company working with Medicaid removed the supplies for providing oxygen on Thursday from the Whites’ home. Carriker’s own daughter has medical issues and has aged out of her own Medicaid waiver program and is now transferring to an adult waiver program. Waiver programs cover groups of people with specific sets of health needs so they can receive tailored health care.
It’s normal for kids to get hurt while playing, Whites said, but when they can’t reach their arms out to catch their fall, something is wrong. It’s a red flag in Whites’ mind, added to a running list of everything Whites hopes to share with doctors whenever the family is able to get coverage again.
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