Caoimhin Adams has been diagnosed with ROHHAD - an illness with no cure or options for treatment.
The mum of a terminally ill child says her family has been "inundated" with kindness since taking her son home to live out his final days.
She told Belfast Live: "Caoimhin is eight. He was born with epilepsy, cerebral palsy and chronic lung disease. But he still attended a full day of school, and loved life, nothing could stop him. He went to Hillcroft and loved school." "His heart rate would go dangerously low, his oxygen would go dangerously low, and his eyes would roll. They'd never seen anything like this before. He went onto a C-PAP machine and sleep studies were done. Everything went pear-shaped from that."
"It's extremely rare. His brain is not telling his body to work - his stomach doesn't work, his bowels have stopped working, he's now on a catheter. It's the brain shutting down the body, slowly. There's no treatment and no cure for ROHHAD.""We knew where we were going with it, and two weeks ago he became palliative. There's been a fast, clinical deterioration over the last six weeks.
"He is a very special child, and he was always a special child. He was sick as a baby but he never let anything stop him. When he was born they told me that he wouldn't walk, or he wouldn't eat, or he wouldn't do any of that - and he outdone all of it. One of my other sons said to me the other day 'mummy he outdone all the other stuff, why can't he outdo this?' They can't understand.
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