State policies for rationing health care during the coronavirus pandemic could allow doctors to cut off treatment for some of the sickest patients in hot zones
“Someone like myself who is disabled, who has a job — I contribute to society, I’ve done good things for the world — if I am going against someone who visited the Poconos and got Covid, they’ll automatically assume my life is less valuable,” said Steven Spohn, a 39-year-old disability rights advocate with spinal muscular atrophy.
Most disability rights advocates acknowledge that a national standard for all the country’s hospitals isn't practical, and that states need to act. Their goal is clear guidance that would discourage withholding care based on a provider's idea about a patient's quality of life or guesses about long-term survival. Disabilities should also be accommodated over the course of immediate and follow-up treatment, as guaranteed by the Americans With Disabilities Act and Obamacare, they say.
It's been left to some local medical bodies to fill the gaps. A health advisory panel for the Dallas-Fort Worth area — home to nearly a third of the state’s population and comprising its second-highest case count — released care rationing guidelines that disability rights groups quickly condemned.
The guidelines were pulled without explanation almost immediately after Disability Rights Texas complained to Severino's office late last month. The website of the panel that wrote the policy
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