While pediatric cancer remains rare, its impact on families still is significant.
In the summer of 2019, Dirk Jansheski, 3, suddenly stopped walking. Mom Rachel Jansheski noticed his leg was swollen and took him to an orthopedic doctor. His X-rays looked fine and Dirk started walking again so it seemed he had recovered. A month later, he stopped walking again and wailed in agony.
The side effects from the treatments for Dirk Jansheski's aggressive cancer made him sicker than his mom has ever seen him. Now that his active treatment stopped, he is improving but he still has lingering problems., a cancer that mostly occurs in immature nerve cells in several areas of the body often starting in the adrenal glands, according to National Cancer Institute.
After his diagnosis on July 26, 2019, he started aggressive treatment. Originally, it was supposed to last 16 months, but doctors added additional chemotherapy and radiation. He also had a massive resection surgery, underwent a stem cell transplant in February 2020 and received immunotherapy. While Dirk, now 4, is also in a clinical trial for a drug, only two of the therapies he received were approved for neuroblastoma. Jansheski said he received treatments commonly used for adult tumors, such as ovarian or testicular cancer. Sometimes the insurance company didn’t want to pay for protocols not officially authorized for Dirk’s cancer.Dirk Jansheski loves superheroes. Hulk is his favorite.
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