When Texas started scrubbing people from Medicaid after a three-year pause on removals during the pandemic, one family lost the insurance coverage that helped provide all treatments for their medically complex child.
But according to a letter addressed this week to the executive commissioner of the state agency that manages Medicaid for Texans, the Texas Health and Human Services Commission, approximately 80,000 eligible people have “lost coverage erroneously.” The letter, obtained by The Texas Tribune, was written by HHSC employees who did not name themselves, signing off only as “Concerned Texans and Dedicated Employees.
Avery Whites, 13, checks on her sister Amelia, 3, during lunch by looking at the machine and gastrostomy tube that she uses to eat, at their home in New Braunfels, on July 27, 2023. Credit: Evan L'Roy for The Texas Tribune Jodi Whites said she had believed Amelia’s coverage would continue. She said she didn’t receive any communication from the state that her renewal application was denied until two weeks before she lost coverage.
Advocates have called for a pause on removing people during the complicated “unwinding” process to stop more eligible families from losing access to care. “This woman is like another mother to my child,” Whites said. “This woman knows my child as deeply as I do when it comes to medical issues.” For her gastrostomy tube, Amelia needs access to syringes, special pump bags and formula. Whites paid out of pocket for a set of syringes once, but it was too expensive, and since then she’s been outsourcing toto reach families of children with similar needs. Some parents from other states have shipped her their leftover supplies. Others have asked her to pick them up, leading Whites to drive hours to different parts of the state to keep Amelia going.
“My daughter would wind up in the hospital for something and I would almost feel relieved because at least here’s evidence that she still needs services,” Carriker said. “It’s awful.” It’s normal for kids to get hurt while playing, Whites said, but when they can’t reach their arms out to catch their fall, something is wrong. It’s a red flag in Whites’ mind, added to a running list of everything Whites hopes to share with doctors whenever the family is able to get coverage again.
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